May 2, 2018
Dear Friend of the Jerome Lejeune Foundation,
One of the major struggles for those with Down syndrome and their families is the search for good medical care. The need does not go away; it begins during pregnancy and continues through infancy, childhood, adolescence, and adulthood.
Miscommunication and misdiagnosis are all too common. Patients and family members may be misunderstood, marginalized, and even mistreated. Family members are often left with the responsibility of educating their medical professionals on how best to help their loved one with Down syndrome, instead of the other way around.
Here are some of the comments we’ve received about the struggle to find care and support from doctors before birth and after:
It is essential that more medical professionals know how best to serve people with Down syndrome without relying on stereotypes and misinformation. As one supporter commented on our blog about his cousin Susan who had Down syndrome:
That’s why the Jerome Lejeune Foundation focuses on funding quality care for people with Down syndrome. We want to ensure that each and every person with Down syndrome in the U.S. is able to live his or her life to the fullest. But we can’t do this work without your help. We need your financial support now to launch a hospital serving those with Down syndrome.
Where are we at with the hospital? The location is set, the clinical team is identified, and two geneticists and doctors from our Paris-based team will move to the United States to provide training and support.
Where do you come in? We now need to secure $600,000 to fund the hospital launch. Once raised, we will be able to welcome patients within less than six months after securing funds!
Only with your help can we ensure that people with Down syndrome receive the support and medical care that they need. Please give today!